Abstract

To identify people's way of acting after the diagnosis of tuberculosis, through their social representations about the disease. Qualitative and descriptive study based on the Theory of Social Representations, in which 23 patients of a school health center in Belém, PA, Brazil, participated. The software ALCESTE was used to generate a class concerning the impact of the diagnosis in people's lives. The dimension of a new reality caused by the diagnosis of tuberculosis is linked with the image of dirt, (process of objectification) communicable/mortal disease that exclude, causing sorrow, despair and revolt (dimension of the affections), reverberating in the patients' actions (dimension of action). global knowledge about tuberculosis, linking the knowledge of everyday life with the reified universe, pointing the multidimensionality of the phenomenon. The conclusion is that investing in the deconstruction of archaic beliefs about the tuberculosis that kills, replacing it with the curable tuberculosis, is necessary.

Highlights

  • Tuberculosis is a millenary disease, which, since its appearance, causes concern to humanity and still has high magnitude and importance in the world, even being an infectious disease that is preventable and curable[1].Tuberculosis was represented for centuries as a mortal disease, result of a life of overeating, which affected people who lived outside society’s standards, were regarded as bohemian people, had high consumption of alcohol and tobacco, and, should be socially excluded

  • About 10.4 million people were affected by tuberculosis in 2015, and more than 1 million died because of the disease, being recognized as the infectious disease of greater mortality in the world, surpassing the sum of deaths caused by SIDA and malaria

  • The corpus submitted to the software Alceste generated 23 Initial Context Units (ICUs), segmented in 263 Elementary Context Units (ECUs)

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Summary

Introduction

Tuberculosis is a millenary disease, which, since its appearance, causes concern to humanity and still has high magnitude and importance in the world, even being an infectious disease that is preventable and curable[1].Tuberculosis was represented for centuries as a mortal disease, result of a life of overeating, which affected people who lived outside society’s standards, were regarded as bohemian people, had high consumption of alcohol and tobacco, and, should be socially excluded. Tuberculosis is a millenary disease, which, since its appearance, causes concern to humanity and still has high magnitude and importance in the world, even being an infectious disease that is preventable and curable[1]. In a more recent representation, the disease started being associated with a state of social misery, subjecting patients to rejection and discrimination, since nobody wants to be labeled as a miserable or be socially isolated[2] These representations have contributed to the construction of a stigmatized social imaginary about disease and, to the way it is seen currently in society. About 10.4 million people were affected by tuberculosis in 2015, and more than 1 million died because of the disease, being recognized as the infectious disease of greater mortality in the world, surpassing the sum of deaths caused by SIDA and malaria. In 2016, 66.796 new cases of the disease were diagnosed and recorded in Brazil, 41.8/100.000 inhabitants being diagnosed in the North, 39.3/100.000 inhabitants in the state of Pará and 75.2/100.000 inhabitants in the city of Belém, Pará, being one of the national capitals with tuberculosis incidence rate above the national value of 32.4/100.000 inhabitants[3]

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