Abstract

INTRODUCTION: The purpose of this Canadian social work research was to explore the healthcare experiences of men and women with a diagnosis of fibromyalgia (FM), a chronic condition of unknown origin.METHODS: This study had a total sample of 35 Southwestern Ontarians who participated in two separate qualitative methods of data collection. Ten participants completed in-depth interviews, while 25 participants engaged in body mapping, an arts-based research method, within a series of focus group sessions. The latter method for data collection is the focus of this article. This material provides social work researchers with a methodological road map by outlining the design and implementation of the body mapping process, sharing the lessons learned in data collection and addressing practical and ethical considerations for future studies.FINDINGS: This research found that: (a) participants experienced structural barriers to accessing healthcare services and unsupportive attitudes from healthcare providers; (b) participants’ healthcare experiences were affected by their gender, age, class and race; and (c) participants used self-management strategies to cope with healthcare barriers. The study also found that the body mapping process had therapeutic value.CONCLUSION: This research contributes information for the transformation of healthcare policies, programmes and clinical practices for the FM population. As a form of applied research, the body mapping process has also helped to empower a marginalised population while promoting innovative forms of social work research.

Highlights

  • ObjectivesThe purpose of this article is to provide social work researchers with a methodological road map by describing how I designed and implemented this body mapping research, weaving in lessons learned and practical and ethical considerations for future studies

  • The purpose of this Canadian social work research was to explore the healthcare experiences of men and women with a diagnosis of fibromyalgia (FM), a chronic condition of unknown origin

  • Art has a multitude of intentions: it can be created by people, groups and communities for the purpose of self-expression, social justice, community building and qualitative inquiry

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Summary

Objectives

The purpose of this article is to provide social work researchers with a methodological road map by describing how I designed and implemented this body mapping research, weaving in lessons learned and practical and ethical considerations for future studies

Methods
Results
Conclusion
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