Abstract
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Algerian Arabic language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach’s alpha, interscale correlations, test–retest reliability, and construct validity (convergent and discriminant validity). A total of 70 JIA patients (10.0% systemic, 35.7.0% oligoarticular, 21.4% RF negative polyarthritis, 32.9% other categories) and 70 healthy children, were enrolled in a paediatric rheumatology centre. The JAMAR components discriminated well healthy subjects from JIA patients. All JAMAR components revealed satisfactory psychometric performances. In conclusion, the Algerian Arabic version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
Highlights
The aim of the present study was to cross-culturally adapt and validate the Algerian Arabic parent, child/adult version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) [1] in patients with juvenile idiopathicInternational Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147 Genoa, Italy1 3 Vol.:(0123456789) S28Rheumatology International (2018) 38 (Suppl 1):S27–S33 arthritis (JIA)
The Algerian Arabic version is the result of the local adaptation of the translation in Arabic performed by the Paediatric Rheumatology International Trials Organisation (PRINTO) centre in Saudi Arabia
The Algerian Arabic JAMAR was fully cross-culturally adapted from the Arabic version performed by the PRINTO centre in Saudi Arabia with no forward and backward translation
Summary
The aim of the present study was to cross-culturally adapt and validate the Algerian Arabic parent, child/adult version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) [1] in patients with juvenile idiopathicInternational Trials Organisation (PRINTO), Istituto Giannina Gaslini, Via Gaslini 5, 16147 Genoa, Italy1 3 Vol.:(0123456789) S28Rheumatology International (2018) 38 (Suppl 1):S27–S33 arthritis (JIA). The JAMAR assesses the most relevant parent/patient-reported outcomes in JIA, including overall well-being, functional status, health-related quality of life (HRQoL), pain, morning stiffness, disease activity/status/ course, articular and extra-articular involvement, drugrelated side effects/compliance and satisfaction with illness outcome. This project was part of a larger multinational study conducted by the Paediatric Rheumatology International Trials Organisation (PRINTO) [2] aimed to evaluate the Epidemiology, Outcome and Treatment of Childhood Arthritis (EPOCA) in different geographic areas [3].
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