Abstract

A major source of controversy between Deaf people and those who support a "social/cultural" view of Deafness as "a life to be lived" and those who see deafness within a "medical model" as a "condition to be cured" has been over the cochlear implantation of young deaf children. Recent research has shown that there are noticeable inequities in access to such procedures in western countries; inequities that give rise to the need for informed public policy discussions. It has also found that parents of newly diagnosed deaf children are not provided with access to all the possibilities for their children-including that of a "Deaf life." How this information can be provided to parents and the public via widespread discussions in the media and elsewhere and involving Deaf people in the implantation counseling process is an issue that needs to be addressed by those responsible for implantation programs.

Highlights

  • A major source of controversy between Deaf people and those who support a ‘‘social/cultural’’ view of Deafness as ‘‘a life to be lived’’ and those who see deafness within a ‘‘medical model’’ as a ‘‘condition to be cured’’ has been over the cochlear implantation of young deaf children

  • It has found that parents of newly diagnosed deaf children are not provided with access to all the possibilities for their children—including that of a ‘‘Deaf life.’’ How this information can be provided to parents and the public via widespread discussions in the media and elsewhere and involving Deaf people in the implantation counseling process is an issue that needs to be addressed by those responsible for implantation programs

  • In the remainder of this article, we review a number of ethical issues that are raised in the context of these opposing views and information available to parents via cochlear implant advocates and press stories of ‘‘miracle cures’’ and the like

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Summary

Merv Hyde Des Power Griffith University

A major source of controversy between Deaf people and those who support a ‘‘social/cultural’’ view of Deafness as ‘‘a life to be lived’’ and those who see deafness within a ‘‘medical model’’ as a ‘‘condition to be cured’’ has been over the cochlear implantation of young deaf children. Recent research has shown that there are noticeable inequities in access to such procedures in western countries; inequities that give rise to the need for informed public policy discussions. It has found that parents of newly diagnosed deaf children are not provided with access to all the possibilities for their children—including that of a ‘‘Deaf life.’’ How this information can be provided to parents and the public via widespread discussions in the media and elsewhere and involving Deaf people in the implantation counseling process is an issue that needs to be addressed by those responsible for implantation programs

Ethical Dimensions of Cochlear Implantation for Deaf Children and Their Families
Inequalities in Cochlear Implantation Access and Outcomes
Informed Consent
Mode of Communication
Conclusion
Findings
Procedures to initiate these changes might include
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