Abstract

The Latino population in the US is rapidly growing and faces profound health disparities; however, engagement of Latinos in biomedical research remains low. Our community-based participatory research (CBPR) partnership has recruited 2,083 Spanish-speaking Latinos into 21 studies over 15 years. We sought to identify and describe the strategies we have used to successfully recruit and retain Spanish-speaking Latinos in research. We abstracted and analyzed data from archived study notes, progress reports, team meeting minutes, and in-depth interviews conducted annually from CBPR partnership members. We used a nominal group process to refine and prioritize strategies. Overall, 13 recruitment strategies and 12 retention strategies emerged. These strategies relied on the creativity and perseverance of the study team and partners. It is essential that we develop and disseminate effective recruitment and retention strategies that engage Latinos in biomedical research to reduce health disparities and promote health equity.

Highlights

  • The Latino population in the United States is rapidly growing and faces profound health disparities; engagement of Latinos in biomedical research remains low

  • African Americans, Latinos experience numerous health disparities when compared with non-Latino whites

  • The National Institutes of Health requires the representation of minority racial/ethnic populations in sponsored human subject research to determine whether the intervention or therapy being studied affects members of minority populations and their subpopulations differently in order to reduce and not perpetuate health disparities [6]

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Summary

Introduction

The Latino population in the United States is rapidly growing and faces profound health disparities; engagement of Latinos in biomedical research remains low. Compared with non-Latino whites, Latinos have higher incidence and prevalence of and/or higher mortality from obesity, cardiovascular disease, cancer, diabetes, human immunodeficiency virus (HIV) infection, sexually transmitted infections, chronic liver disease and cirrhosis, and hypertension and hypertensive renal disease. They have decreased access to healthcare resources compared to non-Latino whites [2,3,4,5]. To date, Latinos remain significantly underrepresented as participants in biomedical research [5]

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