Abstract
ABSTRACT In India, marginalised people with serious or chronic illness face particular challenges to finding sustainable treatment, and often experience financial devastation. One state welfare scheme (the EWS hospital bed quotas) holds the promise of treatment for those in Delhi's margins, through partnerships with corporate hospitals. Yet, the process of gaining access to treatment via the scheme is very frustrating. This ethnography illustrates the ways in which low-income patients’ attempts to lay claim to state services often bring them into play with a mode of the state that is, in anthropologists’ conceptions, opaque, arbitrary and erratic. In response to the ‘illegible’ modes of access to the scheme, patients and their families are compelled to construct and reproduce their eligibility to access treatment, through a repertoire of intricate and entwined practices, namely: the attainment of credible low-income documentation, the use of big men to leverage resources, and different kinds of performance. The burden of enacting these practices is further compounded and troubled by the state scheme's blurry entanglement with the private sector, in which roles and responsibilities for a ‘duty of care’ to citizens with illness are elusive. This paper therefore aims to be an original contribution to the social sciences, in interpreting health-seekers’ experiences of state-private schemes in Delhi within anthropological understandings of the state and marginalised people's meaning-making of illegible state processes.
Published Version
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