Abstract

In health and social care policy, outcomes research (OR) provides insight to outcomes (the end results) of the care provision technologies, structure, and processes impacting individuals and populations. OR may improve effectiveness in health care through improvements in decision making, market access and development of treatment guidelines and best practices (BPs). BPs aim at producing shared value for the target population and society. In OR and BP, personal, health, and social data (PHSD) are needed. The use of PHSD is governed by legal frameworks such as the Health Insurance Portability and Accountability Act (HIPAA) in the US and the General Data Protection Regulation (GDPR) in the EU.

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