Abstract

<p style="text-align:justify">Autism Spectrum Disorder (ASD) refers to a neurodevelopmental disorder that manifests itself and continues during the disorder’s course with symptoms of inadequacies in social interaction and communication, limited and repetitive behaviors and limited interests. It was stated that the burden and fatigue stemming from the long-term care of the child, changing family roles and routines, difficulties encountered during diagnosis and access to services, getting insufficient information about the diagnosis, the need for information to access appropriate education and rehabilitation services and the economic burden caused by satisfying this need, and the difficulties in participating in social life account for burnout in parents of children with ASD. The main purpose of this study was to examine the relationship between parental burnout, and the perceived social support level of parents of children with ASD and their satisfaction level from this support. In addition to this main purpose, (a) the relationship between parental burnout level, and the ages of the children with ASD, the time since diagnosis and parental age, and (b) whether there is a difference in the parental burnout level according to parental education level and gender were examined in the study. Data was collected from the parents of 296 children who met the criteria for participation in the study using the Participant Information Form, Parental Burnout Scale and Revised Parental Social Support Scale. The study results revealed that there was a weak and moderate negative relationship between perceived social support and parental burnout.</p>

Highlights

  • Participation of a new member to the family brings with it the role of being a parent in addition to the role of being a spouse

  • The fact that parental burnout level did not differ according to the gender of parents and parental educational level is similar to the literature (Kwiatkowski & Sekulowicz, 2017)

  • The study analyses revealed that (a) there was no significant relationship between burnout level of parents of children with Autism Spectrum Disorder (ASD), and parental age, age of child with ASD, and the time since diagnosis, (b) parental burnout level did not differ according to the gender of parents and parental educational level, (c) perceived social support level showed a weak negative correlation with parental burnout level, and (d) there was a moderate negative correlation between parental satisfaction with perceived social support level and parental burnout level

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Summary

Introduction

Participation of a new member to the family brings with it the role of being a parent in addition to the role of being a spouse. Changing roles and professional development plans, childcare, sleep problems and so on can be listed among the circumstances the family needs to adapt. These listed changes force the family to use their resources effectively to deal with the stress caused by the situation in question (Glading, 2011; Kaner, 2003). This situation, which is difficult enough for the family, becomes more difficult when the new family member has a disability. Psychological well-being of parents of children with disabilities is affected more negatively than parents of children with natural development (Hartley et al, 2012; Hayes & Watson, 2013; Hsiao, 2016; Manor-Binyamini & Abu-Ajaj, 2017)

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