QUALITY OF LIFE OF MOTHERS OF CHILDREN WITH CONGENITAL SYNDROME AFFECTED BY ZIKA VIRUS.

Paulo Rogério Lobão De Araújo Costa,Jacira Do Nascimento Serra,Andréa Dias Reis,Francisca Bruna Arruda Aragão,Maria Do Desterro Soares Brandão Nascimento,Marcelo Sousa Andrade

doi:10.1590/1984-0462/2021/39/2019231

Paulo Rogério Lobão De Araújo Costa, Jacira Do Nascimento Serra + Show 4 more

Open Access

https://doi.org/10.1590/1984-0462/2021/39/2019231

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Abstract

ABSTRACTObjective: To investigate how mothers of children with congenital syndrome (microcephaly) associated with Zika virus perceive their quality of life.Methods: This is a qualitative study carried out in two stages: at the Maternal and Child University Hospital and at Casa de Apoio Ninar through semi-structured interviews with mothers of children with congenital syndrome associated with Zika virus. Ten women comprised the sample.Results: In line with the critical discourse analysis, four categories emerged based on Fairclough’s 2008 assumptions: Quality of Life and Health - quality of life perception associated with the broad meaning of the term health; Quality of Life and Health Care Systems - characterized by care instability and fragmentation; Quality of Life and Free Time - lack of free time for activities of daily living and leisure; Quality of Life and Future Perspectives - lack of future perspective, considering that most participants had to stop working and studying to take care of their children.Conclusions: Mothers of children with congenital syndrome associated with Zika virus are devoted to their children’s care. Their lack of prospects was considered a consequence of the lack of time for activities of daily living and leisure.

Highlights

The term quality of life (QoL) was used in Eastern and Western cultures
Descriptive studies conducted in the States of Pernambuco and Bahia identified that most patients with congenital syndrome had a clinical condition suggestive of arbovirus, presenting rash, arthralgia, and fever.[4]
Zika virus (ZV) was established as the cause of microcephaly and other severe brain anomalies

Summary

INTRODUCTION

The term quality of life (QoL) was used in Eastern and Western cultures. The association between men, nature, and the environment surrounding them expresses it.[2] we need to understand and study the repercussions of QoL and its association with changes in the daily life of mothers of children with congenital syndrome (microcephaly), as this concept is broad and may vary from individual to individual.[3]. Descriptive studies conducted in the States of Pernambuco and Bahia identified that most patients with congenital syndrome had a clinical condition suggestive of arbovirus, presenting rash, arthralgia, and fever.[4] ZV was established as the cause of microcephaly and other severe brain anomalies. This study aims to investigate how mothers of children with congenital syndrome (microcephaly) associated with ZV perceive their QoL

METHOD

RESULTS AND DISCUSSION

Rio de Janeiro