Abstract
BackgroundIn the last decade, access to national palliative care programs have improved, however a large proportion of patients continued to die in hospital, particularly within internal medicine wards.ObjectivesTo describe treatments, symptoms and clinical management of adult patients at the end of their life and explore whether these differ according to expectation of death.MethodsSingle-centre cross-sectional study performed in the medical and surgical wards of a large tertiary-level university teaching hospital in the north of Italy. Data on nursing interventions and diagnostic procedure in proximity of death were collected after interviewing the nurse and the physician responsible for the patient. Relationship between nursing treatments delivered and patients’ characteristics, quality of dying and nurses’ expectation about death was summarized by means of multiple correspondence analysis (MCA).ResultsFew treatments were found statistically associated with expectation of death in the 187 patients included. In the last 48 h, routine (70.6%) and biomarkers (41.7%) blood tests were performed, at higher extent on patients whose death was not expected. Many symptoms classified as severe were reported when death was highly expected, except for agitation and respiratory fatigue which were reported when death was moderately expected. A high Norton score and absence of anti-bedsore mattress were associated with unexpected death and poor quality of dying, as summarized by MCA. Quality of dying was perceived as good by nurses when death was moderately and highly expected. Physicians rated more frequently than nurses the quality of dying as good or very good, respectively 78.6 and 57.8%, denoting a fair agreement between the two professionals (k = 0.24, P < 0.001). The palliative care consultant was requested for only two patients.ConclusionStaff in medical and surgical wards still deal inadequately with the needs of dying people. Presence of hospital-based specialist palliative care could lead to improvements in the patients’ quality of life.
Highlights
Dying in an acute hospital is a common occurrence in developed countries [1]
Medical and nursing records were assessed for data quality purposes in order to check for inconsistencies between these records and the electronic database used for the analysis
Data were collected on 187 out of 224 patients deceased during the study period (37 patients were excluded because their death occurred < 48 h after admission to the ward)
Summary
Dying in an acute hospital is a common occurrence in developed countries [1]. According to a recent study, 45.7% of terminally ill patients, suffering from both oncologic and chronic-degenerative diseases, die in hospital, 44.4% at home, 6.1% in hospice and 3.8% in other settings (residential health facilities, ambulance) [2]. Due to administrative issues and chronic shortage of hospice-beds, patients at the end of life (EOL) are often not timely transferred to these facilities, continuing to receive therapeutic and diagnostic procedures that have not shown survival benefit [5]. As a consequence, this affects the quality of care for dying people, reported to be of lower quality in hospital than elsewhere [6]. Access to national palliative care programs have improved, a large proportion of patients continued to die in hospital, within internal medicine wards
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