Abstract

Abstract The study describes the profile of children and adolescents with pervasive developmental disorders (PDD) attended at the Psychosocial Care Centers (CAPS) and professionals from these establishments in Brazil and regions. It uses data from the Outpatient Information System of the Unified Health System (SIA/SUS) and the National System of Health Establishments System (SCNES) in 2014-2017. The SIA/SUS was deterministically linked with the SCNES, based on the establishment number. PDD cases were individualized using a variable coded SUS card; 18,852 diagnoses of PDD were recorded in CAPS, most of them by spontaneous demand, 73.2% performed in CAPSi, 50.3% in the age group of 1-6 years old, 80% male and highest proportions of females over 13 years (p <0.001). PDD was not specified in 54.3% of the diagnoses; autistic disorder was the most common PDD (27.2%). Professional teams vary by CAPS type; Procedures of communicative practices and psychosocial rehabilitation were not expressive (10.3%). It was concluded that studies are necessary to clarify a high spontaneous demand, to understand treatment outside CAPSi and to define parameters to evaluate if the procedures used are appropriated for the therapeutic project and possibilities monitoring and evaluate the care of people with PDD.

Highlights

  • Neuropsychiatric disorders are the main source of disease burden among chronic non-communicable diseases (SCHMIDT et al, 2011)

  • | Página 5 de 26 the need for a team of specialized professionals, this study aimed to describe the profile of children and adolescents with pervasive developmental disorder attended at Psychosocial Care Centers and their care production, as well as the profile of professionals of these establishments in Brazil and regions, from 2014 to 2017

  • From 2014 to 2017, there were 18,852 cases diagnosed with pervasive developmental disorder” (PDD) treated at CAPS in Brazil

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Summary

Introduction

Neuropsychiatric disorders are the main source of disease burden among chronic non-communicable diseases (SCHMIDT et al, 2011). In Brazil, the International Statistical Classification of Diseases and Related Health Problems (ICD) is the classification system adopted in the Unified Health System (SUS) and uses the terminology “pervasive developmental disorder” (PDD) to refer to neurodevelopmental disorders (WHO, 1996). The scientific community is currently adopting “autism spectrum disorder” (ASD) to designate three more similar PDD conditions, which were incorporated into the DSM-5 (FERREIRA, 2013) and, recently, in the ICD-XI (WHO, 2018): autistic disorder, Asperger's syndrome and PDD / invasive developmental disorder with no other specification (PAULA et al, 2017; LYRA et al, 2017). Estimating the disease burden of autistic and other disorders is fundamental to direct public health policies and actions that provide adequate interventions and support for these people (BAXTER et al, 2015)

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