Abstract

Survival rates for childhood cancer diagnosed before the age of 18 years have improved due to aggressive multidisciplinary therapeutic approaches. Parents have been found to be psychologically affected by their child’s diagnosis, treatment, side-effects of the treatment and child’s health status. Though parental emotional difficulties, such as depression and anxiety, have been reported to decrease after cancer treatment, parents continue to experience chronic post-traumatic stress (PTS) for a long time after their child’s treatment. Parents may also report persistent feelings of loss, uncertainty, and anxiety about the recurrence of the disease or the emergence of late effects in their child. Such illness-specific distress of the parents should be assessed in order to fully understand their psychosocial functioning. Sensitizing health care professionals to the identification of this factor and its associated difficulties is essential for the implementation of efficient intervention strategies. General health of parents plays an important role in continuation of care for the sick child and the treatment follow up. Parental distress and PTS are associated with the emotional and behavioral functioning of children with cancer. There is a genuine need to offer programs of psychological attention to parents of children with cancer in order to reduce their emotional and cognitive psychopathology and to help them adopt adequate coping strategies.

Highlights

  • Due to improvements in childhood cancer treatment, the overall survival rate of all childhood cancers combined has improved

  • Parental stress or distress may refer to a vast array of symptoms, such as uncertainty, anxiety, depression, traumatic stress, psychological health, etc

  • Parental distress can be approached by a variety of measures including psychological symptom inventories, mixed distress scales, anxiety–depression inventories, mental quality of life subscales or traumatic stress inventories

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Summary

Introduction

Due to improvements in childhood cancer treatment, the overall survival rate of all childhood cancers combined has improved. Parents are expected to rapidly learn a substantial amount of cancer‐related information, adopt particular care giving skills, as well as reorganize their family roles and routines. These adjustments are all aimed at transitioning their focus from parent to both parent and primary caregiver of a child with cancer, often leading to. Parents of children diagnosed with cancer have described the impact of diagnosis and treatment as devastating and associated with feelings of shock, upset, anger and stress. They express sorrow, anxiety and feelings of uncertainty about their child’s prognosis. A parent’s emotional issues may disrupt the ill child’s cancer treatment, impact parenting and support for the ill child and well siblings, and threaten family functioning and stability over time [2,3,4]

Aggravating and risk factors
Pattern of parental stress
The Impact on patients and families
Influence of gender of parent
Assessment tools
Coping with stress
Role of information
Findings
Conclusion
Full Text
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