Abstract
Pediatric Rheumatic Diseases (PRD) represent a group of rare diseases that can lead to significant morbidity. As is the problem with many rare diseases, evidence-based guidelines are lacking and treatment is mostly based on physician experience. Consequently, treatment regiments differ throughout Europe. This year, a new project called SHARE (Single Hub and Access point for pediatric Rheumatology in Europe) was launched to describe what is needed for optimal diagnosis and treatment for children and young adults with rheumatic disease. This project tackles problems across different fields, ranging from access to resources to ethical consideration to quality and uniformity of health care.
Highlights
Pediatric Rheumatic Diseases (PRD) represent a group of rare diseases that can lead to significant morbidity
Treatment regiments differ throughout Europe. This year, a new project called SHARE (Single Hub and Access point for pediatric Rheumatology in Europe) was launched to describe what is needed for optimal diagnosis and treatment for children and young adults with rheumatic disease
The results from the systematic reviews will form the basis of guidelines on minimal standard of care
Summary
Pediatric Rheumatic Diseases (PRD) represent a group of rare diseases that can lead to significant morbidity. This year, a new project called SHARE (Single Hub and Access point for pediatric Rheumatology in Europe) was launched to describe what is needed for optimal diagnosis and treatment for children and young adults with rheumatic disease. This project tackles problems across different fields, ranging from access to resources to ethical consideration to quality and uniformity of health care. After screening, this number of papers will be reduced to several thousands and a review process will be executed according to EULAR guidelines by groups of experts from PReS workgroups
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