SHARE – workpackage 5: evidence based recommendations for diagnosis and treatment of juvenile dermatomyositis

Felicitas Bellutti Enders,Pavla Dolezalova,Janjaap Van Der Net,Liza Mccann,Brigitte Bader-Meunier,Brian Feldman,Ricardo Russo,Pekka Lahdenne,Angelo Ravelli,Lucy Wedderburn,Marco Van Brussel,Nico Wulffraat,Annet Van Royen-Kerkhof,Clarissa Pilkington,Kiran Nistala,Bo Magnusson,Tamas Constantin,Eileen Baildam,Bas Vastert

doi:10.1186/1546-0096-12-s1-p89

Abstract

Juvenile Dermatomyositis is a rare Pediatric Rheumatic Disease, associated with significant morbidity. Evidence-based guidelines are sparse and management is mostly based on physician’s experience. Consequently, treatment regimens differ throughout Europe. In 2012, a European initiative called SHARE (Single Hub and Access point for pediatric Rheumatology in Europe) was launched to optimize and disseminate diagnostic and management regimens in Europe for children and young adults with rheumatic diseases.

Highlights

Juvenile Dermatomyositis is a rare Pediatric Rheumatic Disease, associated with significant morbidity
Recommendations derived from the literature were evaluated by an online survey
Recommendations were accepted if more than 80% agreement was reached

Summary

Introduction

Juvenile Dermatomyositis is a rare Pediatric Rheumatic Disease, associated with significant morbidity. Evidencebased guidelines are sparse and management is mostly based on physician’s experience. In 2012, a European initiative called SHARE (Single Hub and Access point for pediatric Rheumatology in Europe) was launched to optimize and disseminate diagnostic and management regimens in Europe for children and young adults with rheumatic diseases

Methods

Results

Findings

Conclusion