Abstract

While many people enjoy popular culture, these transactional experiences may not translate into formal or academic learning about a subject. In education and science communication settings popular culture is often presented as a source of inaccurate information about science. Different publics are often positioned as, at best, undiscriminating consumers and at worst victims of distorted scientific information. We explore how people use their own knowledge and interests to engage with genetics. Here, data from family interviews are used to illustrate how participants draw on popular culture as a resource to engage with and articulate their beliefs about genetics. Using qualitative data from family interviews we describe two perspectives: first, popular culture represents a source of narratives and metaphors used for rhetorical purposes. Second participants used fictional narratives in more depth - as sense-making devices - allowing people to explore the moral and ethical implications of genetics. We argue that by utilising patients’ interests – such as popular culture – we can potentially enrich communication in a genetic counselling context.

Highlights

  • Genomics is predicted to impact the lives of people as patients, consumers and citizens in a myriad of different ways (Roberts and Middleton, 2018)

  • In education and science communication settings popular culture is often presented as a source of inaccurate information about science (Vackimes, 2010)

  • The analysis presented in this study provides some evidence that popular culture, at least for our participants, within science fiction, documentaries, the news and celebrity, represents a valuable resource people are able to utilise when talking about genetics

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Summary

Introduction

Genomics is predicted to impact the lives of people as patients, consumers and citizens in a myriad of different ways (Roberts and Middleton, 2018). Genomic technology is being utilised in more settings across society than ever before, including medicine, population health screening, recreational consumerism (ancestry testing, nutritional testing), through to policing and crime prevention. Signifying the importance placed on genomics, the most recent annual report of the Chief Medical Officer of the United Kingdom (2017) was entitled “Generation Genome” and stated: Genomics is not tomorrow. I believe genomic services should be available to more patients, whilst being a cost-effective service in the NHS. This is exciting science with the potential for fantastic improvements in prevention, health protection and patient outcomes. We need to welcome the genomic era and deliver the genomic dream! We need to welcome the genomic era and deliver the genomic dream! (Davies, 2013 p.1 p.1)

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