Abstract
Physicians insisted on the need for training. Only the accumulation of descriptions of MPNs in children will lead to a better management of these diseases. Considering the small proportion of pediatric patients with complications after diagnosis, rapid therapeutic de-escalation seems essential to consider during the follow-up in a close collaboration with adult hematologists. • Myeloproliferativ neoplams are rare and chronic deseases, most of thetime affecting adults but also found in few pediatric patients. •There are no recommendations for the diagnosis, therapeuticmanagement or follow-up of children with polycythemia vera oressential thrombocythemia. • Find out how adult haematologists and paediatricians feel about themanagement and follow-up of paediatric patients withmyeloproliferative syndrome through a national practice analysis. •Description of the "real life" follow-up of children with polycythemiavera or essential thrombocythemia in France.
Published Version
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