PO-01-049 KICKSTARTING PATIENT ENGAGEMENT: AN EVENT PLANNING BLUEPRINT FOR CELEBRATING THE ICD PATIENT

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Approximately 33% of patients living with an implantable cardioverter defibrillator (ICD) experience significant psychological, social, and physical distress. Addressing these issues via regular support group sessions may improve patient knowledge, psychological well-being, and community support. To characterize the process for initiating a successful ICD support group for eligible patients at a large academic center. 1673 patients with an implantable cardioverter defibrillator were identified via an electronic medical record search from October 2017 to October 2022. An electronic survey was sent to the identified ICD patients inquiring about their interest in participating in regularly scheduled ICD support group sessions, logistical details, and desired topics of discussion. Based on these results, a virtual and in-person “Kickstarter” ICD support group event was created. A satisfaction survey was conducted following the event. 248/1673 (15%) patients responded to the electronic survey invitation. Of these patients, 71/248 (28.5%) were interested and 108/248 (43%) were unsure in participating in an ICD support group. The most desired program content was coping with an ICD and cardiac conditions (69%). 38% of respondents indicated that they experience psychological distress related to their ICD. 225/248 (93%) of respondents reported that they understood the indication and function of their ICD. Regarding the Kickstarter event, 20 patients attended in-person and 50 patients attended virtually. 31 patients completed the event satisfaction survey and 100% of patients reported that they would be interested in participating in regular support groups. Using electronic medical records to identify patients and sample patient interest in an ICD support group was effective in providing a successful kickstart of our ICD support group at a large academic institution. Results indicated that many patients may be unsure about participation and may need more specifics about the proposed support group before stating an intention. Nonetheless, patient centric information that emphasizes instilling reassurance, confidence, and action planning were particularly salient topics and allowed for a strong initial meeting attendance.