Abstract
Objective: The present study aimed to identify the perception of the parents of children with intestinal elimination stoma about the guidelines received by the health team during hospitalization for their preparation. Methods: This is a cross-sectional, qualitative and quantitative study. Data collector occurred in the pediatric surgery ward of a university hospital through a semi-structured interview, recorded and composed of open and closed questions. Results: Nine parents of children with intestinal elimination stoma were followed up by the pediatric surgery team. Subsequently, it was submitted to the simple and categorical statistical analysis of Bardin. Regarding the main complications, the presence of dermatitis was indicated by 100% of the sample and the fungal infections followed by prolapse by 44.4%. The study showed that the lack of knowledge results in complications and insecurity. The support network is one of the resources used to search for information. A manual with guidelines was pointed out as a strategy for home care. Conclusion: Despite the failures in the guiding and supporting parents of children with a stoma, the feedbacks to help with changes and suggestions for valid strategies were important.
Highlights
To participate in the study, the sample was composed of parents of children aged between zero and 11 years, with intestinal elimination stoma made between January 2014 and December 2016, who were followed up by the hospital and received direct care and domicile performed by the parents. e data were collected between July and December of 2017, through audio-recorded interviews performed at the time before or after the outpatient follow-up consultations of the pediatric surgery team
Regarding the guidelines received by the parents, seven participants reported receiving guidance regarding the surgical technique prior to performing the surgery and two were not clari ed about the procedure prior to the preparation of the stoma
With regard to the number of parents oriented in direct care to the stoma, it was observed that 88% of the sample was not informed about the collector equipment and adjuvants existing in the market and used as a resource for e uent collector and treatment of the stoma, 44.4% did not receive orientation regarding the adaptation of the collector equipment to the child and 33.3% regarding emptying and sanitizing
Summary
E stoma is considered a surgical intervention with the function of facilitating the communication between an internal organ and the external environment[1]. The therapeutic care that involves these children should be oriented and guided by a multidisciplinary team so that the family feels more con dent in dealing with the challenges that such condition provides[1,3,5] To this end, the guidelines should be enlightening regarding the de nition of a stoma, what it serves, how to handle and what will be the routine of daily care for this child, always bringing the positives and bene ts[1,5]. The letter “P” followed by Arabic numbers from one to nine (P1, P2, P3...) corresponding to the chronological order of the meetings was adopted
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