Abstract

Abstract: Background: Alopecia areata (AA) is a chronic immunological disease characterized by hair loss on the scalp and/or body. Medical treatments are frequently ineffective, leaving many individuals with little hope for hair regrowth. Despite high rates of psychological turmoil experienced by people living with AA, little consideration is given to the unique impact of the condition and the potential benefits of coping approaches. Aims: The purpose of this study was to establish a foundation of strategies for coping with AA as recommended by people currently living with the diagnosis. Method: An international sample of 190 participants shared perspectives on types of strategies they believe would be useful for living with AA. A qualitative content analysis approach was used to code and group participant responses. Results: Frequently identified strategies included various forms of social support and strategies for social navigation, perspective-shifting, cosmetic strategies and procedures, and accessing medical and psychological interventions. Limitations: Participants were limited to a largely female convenience sample. The findings were not associated with real-life outcomes, only anecdotal recommendations. Conclusion: The findings of the present study further support prior research yet offer unique perspectives as well.

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