PD48-08 RELIABILITY AND VALIDITY OF THE NEUROGENIC BLADDER SYMPTOM SCORE IN ADULTS WITH CEREBRAL PALSY

Abstract

You have accessJournal of UrologyTrauma/Reconstruction/Diversion: Transitional Urology & GU Congenitalism1 Apr 2018PD48-08 RELIABILITY AND VALIDITY OF THE NEUROGENIC BLADDER SYMPTOM SCORE IN ADULTS WITH CEREBRAL PALSY SEAN ELLIOTT and BLAYNE WELK SEAN ELLIOTTSEAN ELLIOTT More articles by this author and BLAYNE WELKBLAYNE WELK More articles by this author View All Author Informationhttps://doi.org/10.1016/j.juro.2018.02.2312AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookTwitterLinked InEmail INTRODUCTION AND OBJECTIVES Introduction and Objectives: The Neurogenic Bladder Symptom Score (NBSS) is a 22-item instrument used to measure the symptoms of neurogenic bladder; it has been validated in adults with spinal cord injury, spina bifida and multiple sclerosis. We sought to determine the validity and reliability of the NBSS in adults with cerebral palsy (CP). CP can include unique communication and toileting challenges that may or may not be captured by the NBSS. METHODS Methods: 53 adults with CP were recruited from a single urology clinic to complete the NBSS twice over a 2-week period. They also completed the SF-Qualiveen (which measures urinary-specific quality of life, QOL). RESULTS Results: Mean age was 29.5. 54% were male and 66% reported that they had assistance from a caregiver. 68% used a wheelchair. Primary bladder management method as categorized by the initial NBSS question was indwelling catheter in 4, intermittent catheterization in 6, spontaneous voiding in 33 and missing in 11. Median NBSS subdomain scores were 12/29 for incontinence, 9/22 for storage/voiding, 2/23 for consequences and “mostly satisfied” for QOL. Low scores reflect fewer symptoms and better QOL. Reliability was high (intraclass correlation coefficient for total score = 0.90). There was a moderate correlation (R=0.70) between NBSS QOL and SF-Qualiveen. Qualitative feedback suggested that the initial NBSS question would benefit from a category for voiding into a diaper, which is common in our population with advanced CP. CONCLUSIONS Conclusions: The NBSS has high reliability for assessing symptoms and urinary QOL in adults with CP. The NBSS may have a floor effect for detecting consequences or QOL in adults with CP, as reflected by consistently good scores in these subdomains. These findings will inform a future adaptation of the NBSS to fit the unique urinary symptoms of the adult CP population. © 2018FiguresReferencesRelatedDetails Volume 199Issue 4SApril 2018Page: e963 Advertisement Copyright & Permissions© 2018MetricsAuthor Information SEAN ELLIOTT More articles by this author BLAYNE WELK More articles by this author Expand All Advertisement Advertisement PDF downloadLoading ...