PD16-03 PATIENT AND CLINICIAN PRIORITIZATION OF OUTCOMES AMONG MEN WITH ANTERIOR URETHRAL STRICTURE DISEASE

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You have accessJournal of UrologyTrauma/Reconstruction/Diversion: Urethral Reconstruction (including Stricture, Diverticulum) I1 Apr 2016PD16-03 PATIENT AND CLINICIAN PRIORITIZATION OF OUTCOMES AMONG MEN WITH ANTERIOR URETHRAL STRICTURE DISEASE Bryan B. Voelzke, Todd C. Edwards, Donald L. Patrick, and Benjamin N. Breyer Bryan B. VoelzkeBryan B. Voelzke More articles by this author , Todd C. EdwardsTodd C. Edwards More articles by this author , Donald L. PatrickDonald L. Patrick More articles by this author , and Benjamin N. BreyerBenjamin N. Breyer More articles by this author View All Author Informationhttps://doi.org/10.1016/j.juro.2016.02.1155AboutPDF ToolsAdd to favoritesDownload CitationsTrack CitationsPermissionsReprints ShareFacebookTwitterLinked InEmail INTRODUCTION AND OBJECTIVES Patient reported outcome measures (PROMs) are an invaluable resource that allows the patient to communicate about how they feel about their health and well-being. As these measures become more integrated into evidence-based medicine and health care delivery, a comprehensive urethral stricture-specific PROM is needed. We present research aimed to develop such a PROM. Cognitive interviews and item prioritization were performed to reduce previously generated items for development of a urethral-specific PROM. The input of clinicians was queried to compare for comparison to patient data. METHODS We identified potential items during concept elicitation interviews. Six domains were created based on urinary or sexual items (function, impact, symptoms/signs). Two iterative rounds of cognitive interviews were performed among a separate cohort of five and four patients, respectively, to further test patient understanding of these items (n=33 urinary, n=5 sexual). Changes were made to the existing items based upon patient feedback. Item prioritization was conducted among a separate cohort of 20 patients who rated degree of bothersomeness from their urethral stricture (very much, somewhat, does not bother). Male reconstructive urologists (n=22) also rated the items in regards to importance in making treatment decisions. RESULTS Of the top 15 items that patients rated by bother, urinary issues predominated. There was only one sexual item (slow force of ejaculation). On average, the patient cohort was most bothered by anxiety about being unable to void, post-void dribbling, and trouble aiming their stream. There was only 53% agreement between patients and clinicians in the 15 items they independently rated as of highest importance. CONCLUSIONS Based upon the patient-driven item prioritization, we plan to create a PROM, test measurement properties, and modify our instrument, as needed, to create a patient-driven urethral stricture-specific PROM. Discord between patients and clinicians highlight the need for a stricture-specific PROM. © 2016FiguresReferencesRelatedDetails Volume 195Issue 4SApril 2016Page: e395 Advertisement Copyright & Permissions© 2016MetricsAuthor Information Bryan B. Voelzke More articles by this author Todd C. Edwards More articles by this author Donald L. Patrick More articles by this author Benjamin N. Breyer More articles by this author Expand All Advertisement Advertisement PDF downloadLoading ...