Abstract

Researchers and decisionmakers have begun to recognize that economic impacts of serious health conditions reach beyond traditional measures of patient and caregiver costs. However, significant questions remain about how and when to include a fuller range of economic impacts in patient-centered research and in health technology assessment. This project aims to: 1) create a decision framework that defines “economic impacts on patients and caregivers,” 2) identify when economic impact data should be collected and for what purpose, and 3) highlight promising approaches to collecting economic impact data.

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