Abstract
A substantial proportion of chronic disease patients do not respond to self-management interventions, which suggests that one size interventions do not fit all, demanding more tailored interventions. To compose more individualized strategies, we aim to increase our understanding of characteristics associated with patient activation for self-management and to evaluate whether these are disease-transcending. A cross-sectional survey study was conducted in primary and secondary care in patients with type-2 Diabetes Mellitus (DM-II), Chronic Obstructive Pulmonary Disease (COPD), Chronic Heart Failure (CHF) and Chronic Renal Disease (CRD). Using multiple linear regression analysis, we analyzed associations between self-management activation (13-item Patient Activation Measure; PAM-13) and a wide range of socio-demographic, clinical, and psychosocial determinants. Furthermore, we assessed whether the associations between the determinants and the PAM were disease-transcending by testing whether disease was an effect modifier. In addition, we identified determinants associated with low activation for self-management using logistic regression analysis. We included 1154 patients (53% response rate); 422 DM-II patients, 290 COPD patients, 223 HF patients and 219 CRD patients. Mean age was 69.6±10.9. Multiple linear regression analysis revealed 9 explanatory determinants of activation for self-management: age, BMI, educational level, financial distress, physical health status, depression, illness perception, social support and underlying disease, explaining a variance of 16.3%. All associations, except for social support, were disease transcending. This study explored factors associated with varying levels of activation for self-management. These results are a first step in supporting clinicians and researchers to identify subpopulations of chronic disease patients less likely to be engaged in self-management. Increased scientific efforts are needed to explain the greater part of the factors that contribute to the complex nature of patient activation for self-management.
Highlights
A rising problem in health care is the growing number of people with one or more chronic conditions [1]
This study aims to identify determinants of activation for self-management in patients with chronic diseases, i.e. patients with Chronic Obstructive Pulmonary Disease (COPD), Chronic Heart Failure (CHF), Diabetes Mellitus type II (DM-II) and Chronic Renal Disease (CRD)
A descriptive cross-sectional study was conducted to examine the association between determinants and outcome in four patient populations (COPD, CHF, DM-II and CRD)
Summary
A rising problem in health care is the growing number of people with one or more chronic conditions [1]. The growing number of chronic disease patients places a huge burden on our health care systems. Results from meta-analyses show that self-management can improve quality of life, certain disease-specific outcomes and may reduce health care costs [4,5,6]. Positive effects are seen in mean group outcomes, individual trials report that a substantial proportion of patients do not comply or respond to these interventions. This is demonstrated by the highly inconsistent outcomes in five clinical trials evaluating effectiveness of an almost identical self-management program in COPD patients ranging from highly successful to even harmful [7,8]
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