Parents' participation in taking care of hospitalized children: a

Abstract

AbstractBackground and objectiveAlthough “parents' participation in taking care of hospitalized children” is considered as anindispensible principle today, it is still among the concepts with no consensus about it. The mainobjective of this study is to define “parents' participation in taking care of hospitalized children”using hybrid model.Materials and methodsIn this research analysis of “parental participation in parents' participation in taking care ofhospitalized children” was performed using a hybrid model in three steps: literature review(theoretical step), field work, and combination of literature review and field work.FindingsBased on the step of literature review, the best definition for the concept of “parental participation intaking care of hospitalized children” was selected. In the field work step, dimensions of mentionedconcept were extracted; and finally definition of this concept by mixing theoretical and field workstep was proposed as: mutual relationship and gaining parents’ trust, giving required informationand educations to the parents about care and treatment process, asking parents for doing neededhome care jobs, involving the parents in care processes, and finally defining participation/decisionmaking authorities (clarifying the parents role).ConclusionThe findings of this study elucidated dimensions of parental participation in NICU where givingattention to them can lead to their putting to practice.Key Words: Parental participation, Hospital, Nursing, Hybrid model*Corresponding Author:Mahvash Salsali, Faculty of Nursing & Midwifery, Tehran University ofMedical Sciences, Tehran, IranE-mail : m_salsali@hotmail.comREFERENCES-Aein F Alhani F Mohammadi E et al (2009). Parental participation and mismanagement: A qualitative study of childcare in Iran. Nursing Health Science. 11(3) 221-227.-Aein F Alhani F Mohammadi E et al (2011). Struggling to create new boundaries: A grounded theory study ofcollaboration between nurses and parents in the care process in Iran. Journal of Advanced Nursing. 67 (4) 841–853.-Balling K Mccubbin M (2001). Hospitalized children with chronic illness: Parental care giving needs and valuingparental expertise. Journal of Pediatric Nursing. 16 (2) 110-119.-Chapados C Pineault R Tourigny J et al. (2002). Perceptions of parents’ participation in the care of their childundergoing day surgery: Pilot-study. Issues in Comprehensive Pediatric Nursing. 25(1) 59–70.-Corlett J Twycross A (2006). Negotiation of parental roles within family – centered care: A review of the research.Journal of Clinical Nursing. 15 (10) 1308-1316.-Coyne I (1996). Parent participation: A concept analysis. Journal of Advance Nursing. 23 (4) 733–740.-Coyne I Cowley S (2007). Challenging the philosophy of partnership with parents: A grounded theory study.International Journal of Nursing Studies. 44(6) 893–904.-Diaz-Caneja A Gledhill J Weaver T et al (2005). A child’s admission to hospital: A qualitative study examining theexperiences of parents. Intensive Care Medicine. 31(9) 1248–1254.-Doss S DePascal P Hadley K (2011). Patient nurse partnership. Nephrology Nursing Journal. 38(2) 115-125.-Elo S Kyngas H (2008). The qualitative content analysis process.The Journal of Advanced Nursing. 62(1) 107-115.-Espezel H Canam CJ (2003) Parent–Nurse Interactions: Care of Hospitalized Children. Journal of Advanced Nursing.44(1) 34–41.-Gamell A Corniero P Palazon P et al (2011). Parental presence during invasive procedures in Spanish pediatricemergency department: Incidence, perspective, and related anxiety. European Journal of Emergency Medicine. 18 (4)202-207.-Homer C Marino B Cleary P et al (1999). Quality of care at a children`s hospital. Archive Pediatrics and AdolescentMedicine. 153 (11) 1123-1129.-Hopia H Tomlinson P Paavilainen E et al (2005). Child in hospital: Family experiences and expectations of how nursescan promote family health. Journal of Clinical Nursing 14 (2) 212-222.-Huchfield K (1999). Family-centered care: A concept analysis. Journal of Advanced Nursing.29 (5) 1178-1187.-Hupcey J Penrod J (2005). Concept analysis: Examining the state of science. Research for Theory and Nursing Practice19 (2) 197-208.-Jolley J Shields L (2009). The evolution of family-centered care. Journal of pediatric nursing. 24 (2) 164-170.-Korfmacher J Green B Staerkel F et al. (2008) Parent Involvement in Early Childhood Home Visiting. Child Youth Care Forum. 37 (4) 171-196.-Kristensson-Hallstrom I (1999). Strategies for feeling secure influence parents' participation in care. Journal of ClinicalNursing. 8(5) 586-592.-Kristensson-Hallstrom I (2000). Parental participation in pediatric surgical care. American Operating Room NurseJournal. 71 (5) 1021–10241, 1026-1029.-McEwan M Wills E (2010). Theoretical Basis for nursing [3rd edition]. Philadelphia, Lippincott Williams &WilkinsCo.-Meleis A (2011). Theoretical Nursing, Development and Progress [5th edition]. Lippincott Williams & Wilkins co.-O`Haire S Blackford J (2005). Nurse’s moral agency in negotiation parental participation in care. International Journalof Nursing Practice. 11(6) 250-256.-Power N Frank L (2008). Parent participation in the care of hospitalized children: A systematic review. Journal ofAdvanced Nursing. 62 (6) 622-641.-Shields L Nixon J (2004). Hospital care of children in four countries. Journals of Advanced Nursing. 45(5) 475–486.-Tourigny J Chapados C Pineault R (2005). Determinants of parental behavior when children undergo day-care surgery.Journal of Advanced Nursing. 52(5)490–497.-Ygge B Arnetz J (2004). A study of parental involvement in pediatric hospital care: Implications for clinical practice.Journal of Pediatric Nursing. 19 (3) 217-223.-Ygge B (2007).Nurses' perceptions of parental involvement in hospital care. Pediatric Nursing. 19(5) 38-40