Abstract

Background: Being hospitalized with chronic disease is a stressful situation for most children that can be affect their well-being. Parent participation in child care is required for getting a better outcome. Objective: The objective of this study was to identify factors predicting parent participation in caring for hospitalized children with chronic diseases. Methods: In this study, the participants consisted of 234 parents of hospitalized children with chronic diseases and 125 nurses who cared for the children in four tertiary hospitals in central Thailand. Self-reported questionnaires were used in data collection. Data were analyzed using a descriptive statistic, Spearman’s correlation coefficient, and ordinal regression. Results: The results revealed that parent participation in caring for hospitalized children with chronic diseases had a statistically significant positive relationship with perceived self-efficacy in caring for hospitalized child, information support from health care providers, and communication between parents and nurse (r = .39, .34, and .39 p < .01, respectively). Using ordinal regression analysis, the parents’ perceived self-efficacy in caring for their child was the only predictor of parent participation in caring for hospitalized children with chronic diseases, accounting for 72.65%. Conclusion: Parents’ perceived self-efficacy in child care was the only predictor with a strong influence on parent participation in child care. This can be used as preliminary data for developing an effective intervention program for enhancing parent participation that would result in better health and quality of life for those children.

Highlights

  • Chronic diseases are the major health problems among children worldwide

  • Parents’ perceived self-efficacy in child care was the only predictor with a strong influence on parent participation in child care. This can be used as preliminary data for developing an effective intervention program for enhancing parent participation that would result in better health and quality of life for those children

  • Family Centered-Care (FCC) has been applied in different settings of pediatric care in Western and Eastern cultures [10 - 12], including Thailand, where parents generally have access to their hospitalized children 24 hours a day and are primarily involved in caring for these children

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Summary

Introduction

Chronic diseases are the major health problems among children worldwide. Chronic diseases in children are considered as a stressful experience that negatively affects both children and their parents psychologically [3]. Children with chronic diseases are usually given care at home by family, especially the parents, hospitalization may be re-. Centered-Care (FCC) that highlights the importance of family as a primary source of support and takes into account the involvement of family members in all dimensions of patient care [4, 5]. FCC has been applied in different settings of pediatric care in Western and Eastern cultures [10 - 12], including Thailand, where parents generally have access to their hospitalized children 24 hours a day and are primarily involved in caring for these children. Being hospitalized with chronic disease is a stressful situation for most children that can be affect their well-being. Parent participation in child care is required for getting a better outcome

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