Parents' groups and associations

Abstract

Many of the associations concerned with the welfare of sick or handicapped children have been founded by parents. This chapter details what these groups have to offer. It discusses some of the practical aspects of setting up a group or running a local branch, so that it is a source of help and meaning to all who work within it. Most parents of an ill or handicapped child will gain a great deal from getting to know other parents in the same position. There is a wide range of associations which offer help to parents of children with such illnesses as muscular dystrophy, cystic fibrosis, spina bifida and leukaemia. These include the Diabetic Association, cardiac groups, and groups for patients with multiple sclerosis, and those with rheumatic diseases. The primary function of the Parents’ Association is that it gives the parent strength to go on loving and caring for her sick child.