Abstract
Pediatric heart transplantation is associated with a demanding medical regime and complex care that has wide-ranging implications for parents. This cross-sectional study assessed the association between pediatric heart transplantation and parents' health-related quality of life (HRQOL) and family functioning using the PedsQLTM Family Impact Module. The sample comprised of 108 parents of 79 heart transplant recipients. A pronounced negative impact was observed in the subscale of worry (M=52.94, sd=21.89). Higher (positive) total impact scores were significantly associated with age at transplant, time since transplantation and additional familial children. Findings support clinical recommendations to assist parents throughout the transplant trajectory.
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