Abstract
BackgroundHaving a stroke or transient ischaemic attack increases the risk of a subsequent one, especially with high blood pressure (BP). Home‐based BP management can be effective at maintaining optimal BP.ObjectiveTo describe the optimization of a digital intervention for stroke patients and the value of participant diversity, using the person‐based approach (PBA) and integral patient and public involvement (PPI).Setting and participantsStroke patients recruited from primary care and community settings, and health‐care professionals in primary care, in England and Ireland.DesignThree linked qualitative studies conducted iteratively to develop an intervention using the PBA, with integral PPI.InterventionThe BP: Together intervention, adapted from existing BP self‐monitoring interventions, is delivered via mobile phone or web interface to support self‐monitoring of BP at home. It alerts patients and their clinicians when a change in antihypertensive medication is needed.FindingsFeedback from a diverse range of participants identified potential barriers, which were addressed to improve the intervention accessibility, feasibility and persuasiveness. Easy‐to‐read materials were developed to improve usability for patients with aphasia and lower literacy. The importance of including family members who support patient care was also highlighted. Feedback messages regarding medication change were refined to ensure usefulness for patients and clinicians.DiscussionInput from PPI alongside qualitative research with a diverse study sample allowed the creation of a simple and equitable BP management intervention for stroke patients.Patient involvementTwo PPI co‐investigators contributed to design, conduct of study, data interpretation and manuscript preparation; community PPI sessions informed early planning. Study participants were stroke patients and family members.
Highlights
Stroke is the 4th leading cause of death in the UK, with more than 100 000 strokes or transient ischaemic attacks (TIA) occurring every year.[1]
People from Black and minority ethnic groups (BAME), as well as those living in socially deprived areas, are at increased risk of hypertension-related stroke.[2,3,4]
Having a stroke increases the risk of having a subsequent one, especially for those with high blood pressure (BP)
Summary
Stroke is the 4th leading cause of death in the UK, with more than 100 000 strokes or transient ischaemic attacks (TIA) occurring every year.[1]. Having a stroke or transient ischaemic attack increases the risk of a subsequent one, especially with high blood pressure (BP). Objective: To describe the optimization of a digital intervention for stroke patients and the value of participant diversity, using the person-based approach (PBA) and integral patient and public involvement (PPI). Intervention: The BP: Together intervention, adapted from existing BP self-monitoring interventions, is delivered via mobile phone or web interface to support selfmonitoring of BP at home. It alerts patients and their clinicians when a change in antihypertensive medication is needed. Discussion: Input from PPI alongside qualitative research with a diverse study sample allowed the creation of a simple and equitable BP management intervention for stroke patients
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