Abstract
Abstract Objective There is increasing recognition that health systems need to improve the value of patient care by measuring outcomes. Pelvic Venous disorders (PeVD) can have a significant impact on the quality of life of women affected and despite growing recognition, remain underdiagnosed. Developing a core outcome set (COS) for benchmarking care delivery enhances the standardisation of care. We aimed to generate a list of outcomes reported in previous PeVD treatment studies to lay the foundation for developing a COS for PeVD. Methods This scoping review followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping reviews (PRISMA-ScR). Closely related outcomes were classified into domains, and domains into three core areas: disease-specific, treatment-related, quality of life (QOL)-related outcomes. Results Of the 951 records identified, 43 publications were included. From these studies, 96 different outcomes were identified. Closely related outcomes were organised into 37 outcome domains, which were then categorised into 3 core outcome areas; 16 (43%) were disease-specific, 15 (41%) treatment-related, and 6 (16%) were QOL related. Of the 43 studies included, disease-specific outcomes were identified in 41 (95%) studies, treatment-related outcomes in 41 (95%) studies, and quality of life outcomes in only 6 (14%) studies. Conclusions There was significant heterogeneity in outcomes reported in PeVD studies. Most PeVD treatment studies evaluated disease-specific and treatment-related outcomes features of PeVD, but few reported outcomes that measured the impact of quality of life. These findings will inform the next steps in developing a core outcome set for PeVD.
Published Version
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