New patient-reported experience measure for children with allergic disease: development, validation and results from integrated care

C Gore,T Rothenberg,C O'Keeffe,B Hopwood,S Sizmur,A Tallett,J O Warner,R Griffin

doi:10.1136/archdischild-2015-309598

Abstract

ObjectivesTo develop and validate a new allergy-specific patient-reported experience measure (PREM) for children and their parents, and to collect feedback in an integrated care setting.DesignTwo allergy-specific PREMs were produced using...

Highlights

Allergic conditions affect up to a third of children in the UK at some point during childhood making them the most common chronic childhood ailment.[1]
These new patient-reported experience measure (PREM) will allow allergyspecific patient experience reporting for children and parents and help identification of priority areas for improvement and commissioning of care
▸ This study presents the first disease-specific PREM for children with allergic conditions, an essential tool and key quality indicator for future planning and commissioning of services

Summary

Introduction

Allergic conditions affect up to a third of children in the UK at some point during childhood making them the most common chronic childhood ailment.[1]. Access to specialist allergy care is difficult due to underprovision of services, What is already known on this topic. ▸ Patient-reported experience measures (PREMs) are important for evaluating care but very few condition-specific PREMs are available and even fewer for children. ▸ Allergy care for children is difficult to access and provision is patchy despite it being the most common chronic childhood condition in the UK. ▸ This study presents the first disease-specific PREM for children with allergic conditions, an essential tool and key quality indicator for future planning and commissioning of services. The Department of Health commissioned the Royal College of Paediatrics and Child Health (RCPCH) to define care pathways for children with allergic conditions, including the development of allergy-specific patient-reported experience measures (PREMs).[8] As outlined in successive national reports.[2,3,4,5] Once accessed, there is evidence of considerable variability in the quality of allergy care, which is likely to negatively impact on clinical outcomes, patients’ experiences and safety.[6 7]

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Conclusion