Abstract
Needs of Families in Perinatal Palliative Care and Proposal for a Model Training Questionnaire
Highlights
In accordance with WHO principles [1] of palliative care we adapted the definition as a “bio-psycho-social and spiritual approach to sustain and improve patients' and families' life quality facing the problems associated with limiting and /or life threatening diseases that begin in the context of perinatal stage in a broad sense, even when the disease and / or death occur later”. [2] In a broad sense means that, even though WHO defines perinatal period as from 22 weeks to 7 days postnatal, technologic advances imply changes in the duration of that period.The unit to treat is the family
In accordance with WHO palliative care principles, Perinatal Palliative Care is a biopsychosocial and spiritual approach to sustain and improve the patients and families' life quality facing the problems associated with limiting and / or life-threatening diseases that start in the context of perinatality, in a broad sense, even when the disease and / or death occur later
The purpose of the present study is to provide greater knowledge about families' needs and coping resources in perinatal palliative care to achieve a better approach and training
Summary
In accordance with WHO principles [1] of palliative care we adapted the definition as a “bio-psycho-social and spiritual approach to sustain and improve patients' and families' life quality facing the problems associated with limiting and /or life threatening diseases that begin in the context of perinatal stage in a broad sense, even when the disease and / or death occur later”. [2] In a broad sense means that , even though WHO defines perinatal period as from 22 weeks to 7 days postnatal, technologic advances imply changes in the duration of that period.The unit to treat is the family. In accordance with WHO principles [1] of palliative care we adapted the definition as a “bio-psycho-social and spiritual approach to sustain and improve patients' and families' life quality facing the problems associated with limiting and /or life threatening diseases that begin in the context of perinatal stage in a broad sense, even when the disease and / or death occur later”. It is understood by NEED all that is indispensable to live in a state of full health.” [8] We have to identify the families' needs and coping resources to provide quality care. The perinatal period still offers high morbidity and mortality, requires highly specialized care as
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