Narratives of long-term resilience: two cases of women aging with spinal cord injury

Abstract

Spinal cord injury (SCI) is a life-changing event that drastically affects a person's sense of identity, ability to participate, and quality of life (QOL). Researchers studying the coping process have often focused on identifying maladaptive behaviors and barriers, and less on positive psychology approaches emphasizing individual strengths. More recently, positive psychology constructs, such as resilience, have received greater attention from SCI researchers. Early and ongoing recognition of resilience in patients with SCI may provide important information to clinicians about adjustment and long-term management. Our purpose is to document patterns and indicators of resilience, using a narrative approach, during various stages of adjustment following SCI. Narrative case presentations are deriving from in-depth qualitative interviews with two women aged 63 and 52, living with SCI. Both had complete motor neurological injuries that incurred at 27 and 35 years, respectively. Each woman was interviewed twice, approximately 10 years apart (age 63 and 52, and age 54 and 42). Each demonstrated high levels of resilience through evolving roles of family and caregivers, inner personal strength, and participation in their respective communities. We highlight differences, similarities, and evolution of resilience factors in and between each case. These cases illustrate examples of long-term resilience, adding richness to the resilience construct. Results provide knowledge that can be used to target rehabilitation interventions toward successful coping styles. In sharing these cases, we hope to assist clinicians and researchers to better recognize patterns of resilience in their own patients and study participants.