Abstract
Finnish institute for health and welfare is developing national health care quality registers for the ongoing project in 2018–2020, which covers seven disease pilot registers. This article describes professionals’ and patient associations’ cultural health care quality conceptions at developing process, reflecting to Weick’s sensemaking theory and patient-centered care. Research data ( N = 13) were collected by individual thematic semi-structured interviews from pilot registers’ professionals and patient associations. Data were analyzed using the discursive approach. Six main discourses on the shared sociocultural meanings of health care quality were constructed: confidence and reliability, information and understanding, safety and medical effectiveness, support, benchmarking and utility, and requirement and justice. Health care quality is built-in culture and action to achieve patient-centered care and is complex to define. Patient–clinician interaction, understanding, and support are constructive elements to make sense of quality registers’ necessity and data collection. The importance of Patient-Reported Outcome Measures (PROMs) and Patient-Reported Experience Measures (PREMs) measures is recognized to strengthen the patient-centeredness, which reflects to all health care decision-making, processes, and care. The data publication should be designed clearly and visually versatile. The study can offer new aspects for selecting valid quality indicators to produce comprehensive information for health care quality registers.
Highlights
There are several health care quality registers (HCQRs) in Europe and other continents (Beattie et al, 2016; Lundström et al, 2014; Santana et al, 2019; Sigvant et al, 2019)
Sweden has extensive HCQRs from several years (Emilsson et al, 2015; Nordin et al, 2018); it can offer a practical example to others
The aims of the project are similar with the international research information: HCQRs can produce useful information to improve the health care pathway and to develop and study the effectiveness and patient safety
Summary
There are several health care quality registers (HCQRs) in Europe and other continents (Beattie et al, 2016; Lundström et al, 2014; Santana et al, 2019; Sigvant et al, 2019). HCQR includes data on patients’ risk factors, prognostic factors, performed diagnostic examinations, and provided treatments. All, they contain information on the results of treatment from the patient’s perspective, known as PatientReported Outcome Measure (PROM) and Patient-Reported Experience Measure (PREM). PREM reports patient’s feedback about satisfaction and comprehensive patient experience on health care services, such as customer service (Weldring & Smith, 2013)
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