Map of individual special needs of students in need of long-term treatment as a tool for building the educational route of a hospital school student: identifying psychological and pedagogical characteristics

Abstract

Introduction. The realization of the right to education of children with chronic somatic diseases and in need of long-term treatment is possible by ensuring the personalization and individualization of the educational route. Information about psychological, pedagogical, social and medical characteristics of a pupil helps to develop and implement it. Purpose of the study: scientific substantiation, design and testing of the Map of individual special needs of hospital school students with data on educational, psychological and pedagogical characteristics of children and adolescents studying in hospital school in 2021-2022. Materials and methods. The participants were students of the flagship site of the project of hospital schools of Russia "UchimZnaem" in Moscow in the number of 396 people aged from 4 to 18 years. Methods: source analysis, design, psychological and pedagogical experiment, expert evaluation, statistical processing of results. Results. A map of individual special needs of children in need of long-term treatment was developed and implemented, which became an effective tool for implementing an individual educational route for hospital school students. It was revealed that the majority of respondents (96%), despite the possible risks of deterioration of their psychophysiological condition due to severe and prolonged treatment, are able to study in general education programs and do not have pronounced cognitive deficits, have high learning motivation, the indicators of development of higher mental functions correspond to age norms. But there were also revealed difficulties in 57% of schoolchildren related to communicative and emotional-volitional spheres. Conclusions. The proposed Map of individual special needs can be used as a tool for personalization and individualization of education of children in difficult life situations, revealing the key characteristics of schoolchildren. Also the obtained data can be used by psychologists, teachers, tutors when organizing training in medical hospitals and at home for children and adolescents with chronic somatic diseases, as they demonstrate possible risks in the development and psychological well-being of this category of students.