Longitudinal Oncology Registry of Head and Neck Carcinoma (LORHAN): Findings related to the oropharynx.

Abstract

5585 Background: We present the first report of findings focused on the oropharynx (OP) from LORHAN, a prospective, observational national registry of head and neck carcinoma (HNC) patients (pts). The Registry is now sufficiently large to perform site-specific analyses. Methods: Pts with newly diagnosed HNC, scheduled to receive radiotherapy (RT) or chemotherapy (CT), ≥18 years of age and who have provided written informed consent are eligible for enrollment. Electronic records are locked once they have been reviewed and signed off by the investigator. Results: As of Jan. 3, 2010, 3525 pts have been enrolled in LORHAN. Nearly 100 community (Comm) and academic (Acad) sites from 35 states have enrolled pts in the registry. Of principal investigators participating in LORHAN, 22% designated their setting as Acad, 78% as Comm. Acad centers accrued 65% of pts. Of pts enrolled, there are 941 locked baseline and treatment records for pts with the primary diagnosis of OP cancer, representing 44% of locked records ...