Long COVID Illness: Disparities in Understanding and Receipt of Care in Emergency Department Populations

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BackgroundMost Long COVID studies rely on traditional surveillance methods that miss underserved populations who use emergency departments (EDs) as their primary health care source. ObjectivesIn medically-underserved ED populations, we sought to determine 1) whether there are gaps in awareness and self-declared understanding about Long COVID illness, and 2) the prevalence, impact, and receipt of care for Long COVID symptoms. Design, Setting and ParticipantsCross-sectional, convenience sample survey study of adult patients at 11 geographically representative US EDs from 12/2022-10/2023. MeasurementsAwareness and self-declared understanding about Long COVID illness; prevalence, impact, and receipt of care for Long COVID symptoms. ResultsOf 1618 eligible patients,1455 (89.9%) agreed to participate: 33.4% African American, 30.9% Latino/a, and 17.1% lacked primary care; 33.2% had persistent COVID symptoms lasting > 1-month, 20.3% had symptoms > 3-months; 49.8% with Long COVID symptoms missed work/school because of symptoms; 30.3% of all participants and 33.5% of participants who had Long COVID symptoms had prior awareness and self-declared understanding of Long COVID. Characteristics associated with poor understanding of Long COVID were: African American race (adjusted odds ratio [aOR] 3.68, 95% confidence interval [CI] 2.66-5.09) and Latino/a ethnicity (aOR 3.16, 95% CI 2.15-4.64). Participants lacking primary care were less likely to have received Long COVID care (24.6% vs 51.2%; difference 26.6%; 95% CI 13.7-36.9%). Conclusions/RelevanceDespite high prevalence and impact of Long COVID symptoms, most of this ED population had limited awareness and self-declared understanding of Long COVID and many had not received care. EDs should consider development of protocols for diagnosis, education, and treatment of Long COVID illness.