Living in the Balance: Exploring the Lived Experiences of Latino Mothers of Children with ASD

Abstract

ABSTRACT Autism spectrum disorder (ASD) has a profound impact on millions of families in the United States. While Hispanic families represent the most rapidly growing demographic group within this population, little research explores their unique experiences in coping with the family impacts of ASD. This phenomenological study explored the lived experiences of Hispanic mothers of children with ASD. Findings suggested that their experiences were reflective of existing knowledge around the family impacts of ASD as participants articulated the challenges of managing emotional stressors and balancing family needs with the needs of the child with a disability. However, findings also suggested ways in which the construction of the role of motherhood in Hispanic culture held unique implications for participants as they sought and struggled to find this balance. Implications for practice with Hispanic families of children with ASD based on their unique experiences are discussed.