Living between two cultures: stress in Korean American family caregivers of individuals with Alzheimer’s disease and related dementias

Abstract

Objectives Korean-American primary family caregivers of individuals with Alzheimer’s disease and related dementias (ADRD) may face unique stress, attributable to the distinctive characteristics of Korean-Americans, including their immigration history, culture, and language. Using narrative inquiry, we explored caregiving experiences, focusing on stress, and identified factors contributing to stress among Korean-American family caregivers providing in-home care to individuals with ADRD. Method We conducted one-on-one, semi-structured interviews with 15 Korean-American family caregivers of individuals with ADRD. We analyzed the participants’ stress in the context of temporality (i.e. timelines of their caregiving), sociality (i.e. cultural and familiar contexts), and place (i.e. various life settings). Results The majority of participants were female (73%), Korean-born immigrants (93%), and had relatively high levels of education with an average of 16 years of education. We found that 1) caregivers’ stress continued but varied along the ADRD caregiving trajectory, 2) cultural expectations and relationship dynamics amplified stress levels, and 3) maintaining a Korean identity while living in the United States limited caregivers’ social connections. Conclusion Our findings highlight the nuances of stress among Korean-American ADRD family caregivers. Specific support needs should be addressed in the development of culturally tailored stress reduction interventions for this understudied population.