Abstract
Background: Many patients are currently cared for at the end-of-life stage at home, and the number is expected to increase. The patient’s participation is a prerequisite for good care, which also r ...
Highlights
Many patients are currently cared for at the end-of-life stage at home, and the number is expected to increase.The patient’s participation is a prerequisite for good care, which relates to ethical principles and evidence-based action
The importance of participation is clarified in Swedish law, where the Swedish Patient Act mandates that participation in healthcare requires that care-related activities take place in consultation with the patient and there is room for the patient’s wishes and conditions [3,4]
This study describes adult patients’ experiences of their life situation and their participation in palliative home care
Summary
Many patients are currently cared for at the end-of-life stage at home, and the number is expected to increase.The patient’s participation is a prerequisite for good care, which relates to ethical principles and evidence-based action. It is important for patients to continue to live in a context of preserved autonomy with the experience of having some control over life for the last time, and patients should have the opportunity to prepare for the end of life while maintaining self-image and dignity. The patient’s participation is a prerequisite for good care, which relates to ethical principles and evidence-based action [2]. Patients should know that starting this planning early will extend the time and opportunity to change their minds about these decisions and can increase a patient’s motivation and satisfaction, thereby reducing stress and anxiety [6,7]
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