Abstract
This study aims to examine the family structure of patients in palliative home care in the light of the Calgary Family Assessment Model (CFAM). This is a qualitative research, conducted in the residences of patients enrolled in the Palliative Care Unit and Pain Treatment (PCUP) of a university hospital located in Recife/Pernambuco, Brazil, in the period from May to July 2014. The sample consisted of five patients enrolled in the PCUP and five family caregivers. Data collection was performed through an interviewing technique using two instruments: the genogram and eco-map. The empirical material was analyzed in the light of the Calgary Model of Family Assessment. The application of the Model demonstrated external family structure relationship with the non-existent neighborhood; support network in diverse health, with very strong relationship with the PCUP highlighting the link with nursing professional; weak relationship concerning Basic Health Unit and strong connection to the church. The obtained data suggest that each researched family has demands to be thought of as focus of nursing care and have faith as a resource for coping with the disease. It follows that the application of CFAM has highlighted the intra-family ties and the relations established with the support networks, signaling strategies to optimize patient care without a therapeutic possibility of cure and their family.
Highlights
In recent decades, the family has experienced a process of transformation in its structure and organization
The survey was conducted in the residences of patients enrolled in the Palliative Care Unit and Pain Treatment (PCUP) of a university hospital located in Recife, the capital of Pernambuco state, Brazil
Focusing on the structural category of the family, the diagrams shown below illustrate the presentation of the results to be able to assess the intra-family ties and the relations established with the support network and the use of the family, providing bases for the assessment of family interactions
Summary
The family has experienced a process of transformation in its structure and organization. This can be understood as a complex institution that is part of a group of people organized by the parental and/or coexistence relationship [1] In this light, the family system is funded from the bonding, love, and respect existing between the individuals who compose it, keeping a place of shelter and safety among its members [2]. In this sense, the involvement of the family in the care of the individual with a disease that threatens the continuity of life is paramount, especially when attention is implemented at home, cozy, care, protection, respect, resilience environment and proximity to significant people providing dignity of life [4]. The Palliative Home Care allow to assist the person in disease situation in their environment where they live, respecting the autonomy of the patient, developing a comprehensive care and preparing them to death with the possibility to be close to their loved ones and present in the context which is inserted [5]
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