Legal issues and risks associated with implementation of electronic register of human genomic information in Ukraine

Abstract

It is proposed to specify in the Law of Ukraine “On the State Registration of Human Genomic Information” some provisions regarding military personnel, policemen, members of the rank and file of the civil defense service, as well as members of voluntary formations of territorial communities, from which the selection of biological material, in the event of the implementation of martial law, will be carried out in a mandatory manner, namely: specify the possibilities of extraction and destruction of genomic information in connection with: dismissal from military service and subsequent removal from military registration; with death in order to minimize the risks of access to personal data of a person and his relatives. The Law should clearly define the structure of the Electronic Register of Human Genomic Information. Considering the fact that martial law has been implemented in Ukraine, it is necessary to introduce the following independent section “Genomic information of unidentified human corpses, their remains and parts of the human body, missing persons and close relatives of missing persons”. It has been proven that it is necessary to carefully write down the issue of information protection, namely: which body monitors compliance with information protection requirements; how to ensure the protection of the information of the Electronic Register of Human Genomic Information.