Abstract
Thalassaemia is chronic hereditary blood disorder. Medication has extended patients' lifespans, but research on their quality of life is scarce due to psychological impacts and medication adherence issues. The objective is to develop and validate a survey assessing the knowledge, attitude, and practice of Malaysian thalassaemia patients towards medication. We will use an exploratory mixed-methods approach with ethical approval from UiTM. Phase I involves semi-structured interviews with thalassaemia patients. Phase II focusses on creating and validating KAP instruments with expert panels and pilot testing. The tools will help medical professionals gather data to improve treatment compliance.
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