Knowledge about hemophilia among teachers of patients with hemophilia in Indonesia

Abstract

BackgroundHemophilia is a rare coagulation disorder of which not a lot of people are familiar with. Teachers of patient with hemophilia (PWH) have a substantial role in supporting school-aged PWH. There have been few studies about the knowledge of school-aged PWH teachers regarding the disease. ObjectiveThis research assessed the knowledge of PWH school teachers regarding the hemophilia. MethodsWe conducted a cross sectional study using a closed questionnaire about knowledge of hemophilia. Participants of the study were teachers of PWH students in North Sulawesi. The questionnaire was validated with a Cronbach α of 0.775. ResultsWe enlisted 13 schools with school-aged PWH, but only 10 schools participated. One hundred and eleven teachers enrolled to this study. Of participants, 85.6% are female and 14.4% are male. As much as 44.2% of them were senior high school teachers, 25.2% were junior high school teachers, and 30.6% were elementary school teachers. Furthermore, 34.2% of the participants did not know anything about hemophilia, 13.5% of them had low knowledge, 36% had fair knowledge, and 16.3% had good knowledge. The senior high school teachers were the most who had good knowledge about hemophilia (10.8%). There were 6 sport teachers, 2 had no knowledge about hemophilia, and 4 had fair knowledge. ConclusionA significant number of teachers of school-aged PWH had no knowledge about hemophilia and only a few of them had good knowledge. Hence, more educational programs are needed to improve their knowledge.