Abstract

Juvenile inflammatory arthritis: Development and validation of an illustrated questionnaire for measurement of children’s and adolescents’ motivation

Highlights

  • The development of initiative and autonomy is a critical task of middle childhood and adolescence [1]

  • The dynamic nature of the disease, as well as the subjective unique experience which vary amongst children living with Juvenile idiopathic arthritis (JIA), reflect negatively on the children’s attitude, psychological status and ability to cope with their day to day lives

  • Based on the critical component for individuals to participate in the management of their chronic conditions [16], a review of the literature [17,18,19,20,21,22] and discussion with the children/parents groups; children living with JIA who are likely to have better health outcomes were identified as those who: 1. Understand the nature of their disease, 2

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Summary

Introduction

The development of initiative and autonomy is a critical task of middle childhood and adolescence [1]. Juvenile idiopathic arthritis (JIA) is the most common chronic rheumatic disease of childhood. It affects approximately 1 in 1,000 children under the age of 16 years [2]. Children and adolescents with JIA live with chronic or recurrent pain and disability, which can severely limit their ability to complete daily physical tasks and participate in school and social activities [3,4]. JIA has been acknowledged for its negative impact on the children’s psychosocial development. The dynamic nature of the disease, as well as the subjective unique experience which vary amongst children living with JIA, reflect negatively on the children’s attitude, psychological status and ability to cope with their day to day lives. This, subsequently, imposes a set of behavioural requirements [5]

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