Abstract
BackgroundIncreasing numbers of patients are receiving dialysis, particularly in high‐income countries. Patients receiving haemodialysis often experience fatigue, anxiety, depression and boredom. It is suggested that arts activities could have a therapeutic effect.ObjectiveThis study aimed to explore patients' perspectives of participating while on dialysis in chosen arts and creative living activities provided by tutors at the bedside.DesignQualitative semi‐structured interviews in the interpretive tradition were conducted, with thematic analysis.Setting and ParticipantsFifteen patients of different ages, genders and ethnicities who participated in an arts activity while receiving haemodialysis in an inner‐city dialysis unit in England were included in this study.ResultsParticipants reported positive experiences of engaging in art activities. Their views on the value of the activities were grouped into five themes: diversion from receiving haemodialysis, a sense of achievement, contribution to a more positive self‐identity, increased confidence and motivation and a therapeutic talking relationship. Participants suggested that patient peer promotion of the activities could increase uptake, with patient choice of activity seen as important.ConclusionsParticipation in a chosen arts activity while receiving haemodialysis was perceived by patients to have positive psychosocial effects. We theorize three potential explanatory mechanisms for these effects: That the experience of participating in the activities engendered positive psychological states of ‘being in the flow’; enhanced self‐esteem to add to personal coping mechanisms; and offered additional facets to the patient's identity that countered the stigmatizing effect of receiving dialysis.Patient or Public ContributionPatients and public representatives advised on the design, research methods and tools.
Highlights
Patients with end‐stage kidney disease (ESKD) experience an irreversible loss of kidney function, requiring kidney replacement therapy (KRT) by dialysis or transplantation
About 0.1% of the global population have ESKD, with most people on KRT living in high‐income countries.[1]
Increasing numbers of patients are in need of KRT,[1] with additional demand for dialysis associated with coronavirus disease 2019 (COVID‐19) patients.[2]
Summary
Patients with end‐stage kidney disease (ESKD) experience an irreversible loss of kidney function, requiring kidney replacement therapy (KRT) by dialysis or transplantation. Objective: This study aimed to explore patients' perspectives of participating while on dialysis in chosen arts and creative living activities provided by tutors at the bedside. Setting and Participants: Fifteen patients of different ages, genders and ethnicities who participated in an arts activity while receiving haemodialysis in an inner‐city dialysis unit in England were included in this study. Results: Participants reported positive experiences of engaging in art activities. Their views on the value of the activities were grouped into five themes: diversion from receiving haemodialysis, a sense of achievement, contribution to a more positive self‐identity, increased confidence and motivation and a therapeutic talking relationship. Conclusions: Participation in a chosen arts activity while receiving haemodialysis was perceived by patients to have positive psychosocial effects. We theorize three potential explanatory mechanisms for these effects: That the experience of participating in the activities engendered positive psychological states of ‘being in the flow’; enhanced self‐esteem to add to personal coping mechanisms; and offered
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