Involvement of information professionals in patient- and family-centered care initiatives: a scoping review.

Antonio P Derosa,Judy C Stribling,Diana Delgado,Lily Martin,Becky Baltich Nelson,Keith C Mages

doi:10.5195/jmla.2019.652

Abstract

ObjectiveThe goal of this scoping review was to collect data on patient- and family-centered care (PFCC) programs and initiatives that have included the direct involvement of librarians and information professionals to determine how librarians are involved in PFCC and highlight opportunities for librarians to support PFCC programs.MethodsSystematic literature searches were conducted in seven scholarly databases in the information, medical, and social sciences. Studies were included if they (1) described initiatives presented explicitly as PFCC programs and (2) involved an information professional or librarian in the PFCC initiative or program. Based on the definition of PFCC provided by the Institute for Patient- and Family-Centered Care, the authors developed a custom code sheet to organize data elements into PFCC categories or initiatives and outcomes. Other extracted data elements included how the information professional became involved in the program and a narrative description of the initiatives or programs.ResultsAll included studies (n=12) identified patient education or information-sharing as an integral component of their PFCC initiatives. Librarians were noted to contribute to shared decision-making through direct patient consultation, provision of health literacy education, and information delivery to both provider and patient with the goal of fostering collaborative communication.ConclusionsThe synthesis of available evidence to date suggests that librarians and information professionals should focus on patient education and information-sharing to support both patients or caregivers and clinical staff. The burgeoning efforts in participatory care and inclusion of patients in the decision-making process pose a unique opportunity for librarians and information professionals to offer more personalized information services.

Highlights

The adoption of patient- and family-centered care (PFCC) is increasing across the national health care landscape [1]
Librarians were noted to contribute to shared decision-making through consulting directly with patients, improving the health literacy of patients by teaching them how to evaluate health information, and delivering information to both providers and patients with the goal of fostering collaborative communication. The findings of this scoping review suggest that librarians who are interested in PFCC can leverage their daily activities to contribute information to the Medicare Attestation Worksheet to document meaningful use requirements, which provide for reimbursement of patient-specific education under the Medicare Access and Chip Reauthorization Act of 2015 [17]
Stage 2 of the Eligible Professional Meaningful Use Core Measures outlines the requirements of organizations to perform electronic health record (EHR) tasks to achieve coordination of care

Summary

Introduction

The adoption of patient- and family-centered care (PFCC) is increasing across the national health care landscape [1]. This approach emphasizes patients and their families as critical partners throughout the entirety of the health care process. The IPFCC provides national and international leadership for advancing the practice of PFCC by promoting collaborative partnerships among patients, families, and health care professionals. They provide information and resources to any interested group—from policy

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Results

Conclusion