Paediatric Patient and Family-Centred Care: Ethical and Legal Issues

Abstract

Preface.- Acknowledgements.- Notes on Contributors.- Chapter 1: Introduction.- Part I: Introduction to Patient and Family-Centred Care.- Chapter 2: Paediatric Patient-Centred Care: Evidence and Evolution David B. Nicholas, Krista Keiltyand Karima Karmali.- Chapter 3: A Canadian Perspective on a Child's Consent to Research Within a Context of Family-Centred Care: From Incompatibility to Synergy Linda Sheahan, Michael Da Silva, Christine Czoli and Randi Zlotnik Shaul.- Chapter 4: Resource Allocation in Paediatric Patient and Family-Centred Care Jennifer L. Gibson.- Part II: Legal, Ethical and Cultural Considerations.- Chapter 5: Culture, Religion and Family-Centred Care: Rani H. Srivastava.- Chapter 6: Ethical and Legal Issues in Patient and Family-Centred Care: Canadian First Nations, Metis and Inuit People Julija Kelecevic.- Chapter 7: Accounting for the Family in Law: An Impartial but not Impersonal Point of View Lee A. Chapman.- Chapter 8: Legal Considerations in Paediatric Patient and Family-Centred Healthcare Joan M. Gilmour.- Part III: Implementation and Lived Experience.- Chapter 9: Paediatric Patient-Centred Care at SickKids: Advancing Child & Family-Centred Care Krista Keilty, David B. Nicholas, Karen Sappleton and Karima Karmali.- Chapter 10: The Effect of Patient and Family-Centred Care (PFCC) Delivery Model on Paediatrics at the Thunder Bay Regional Health Sciences Centre Bonnie Nicholas.- Chapter 11: Creating Partnerships for Life: One Family's Story of Paediatric Patient and Family-Centred Paediatric Care Janis Purdy.- Chapter 12: Supporting the Developing Autonomy of Youth Patients: Reflections on the Role of Healthcare Providers Christy Simpson.- Part IV: In Context.- Chapter 13: Participation in Paediatric Research Studies Nancy Walton.- Chapter 14: Clinical Genetics Practice: Integrating Paediatric Patient and Family-Centred Care Cheryl Shuman and Riyana Babul-Hirji.- Chapter 15: End-of-Life Decision-Making in the Neonatal Intensive Care Unit: Serving the Best Interests of the Newborn Within a Patient and Family-Centred Care Framework Jonathan Hellman.- Chapter 16: Legal and Ethical Issues in Child-and Family-Centred Care:Transplantation Rebecca A. Greenberg, Michael Campbell and Linda Wright.- Chapter 17: Patient and Family-Centred Care: Critical Partnerships When Treating Adolescent Anorexia Nervosa Lori d'Agincourt-Canning, Lucinda Kunkel and Karen Dixon.- Chapter 18: Lost in Transition: Legal and Ethical Approaches When Applying Patient- and Family-Centred Care to Adolescents With Disabilities Maria L.Z. McDonald and Lucie Wade.- Chapter 19: Ethical Conflicts That may Arise When Caring for Dying Children Christine Newman, Adam Rapoport and Gurjit Sangha.