Investigation of the life quality of the rectal intestinal stoma patients and their families

Abstract

Objective To investigate and analysis the life quality of the rectal intestinal stoma patients and their families in three level of first -class hospital of Shanghai city .Methods One hundred and three patients with the rectal intestinal stoma and their families were surveyed by the quality of life core questionnaire of the European cancer research and treatment organization （EORTC QLQ-C30） and the simple health status questionnaire （SF-36） to assess their quality of life.Results The life quality of the rectal intestinal stoma patients was at a low level within three months after operation .The overall score of the life quality of the rectal intestinal stoma patients was （46.53 ±25.79）, and was lower than （51.56 ±24.61） in the national norm, and the difference was statistically significant （ t =-2.115, P 〈0.05）.The overall health score of SF-36 in patients＇ families was （54.65 ±23.19）, and was lower than （84.40 ±32.40） in the national norm, and the difference was statistically significant （t=-17.970, P〈0.01）.Compared the national norm , no significant differences were found in the scores of physiological function , body pain, emotional function, mental health in the rectal intestinal stoma patients and their families （P〉0.05）.The scores of physiological roles , vitality, social function in the rectal intestinal stoma patients and their families were lower than those of the national norms , and the difference was statistically significant （P〈0.05）.The body function, role function, cognitive function, social function, in the rectal intestinal stoma patients were positive correlation with the life quality of their families （r=0.198, 0.167, 0.072, 0.072, respectively;P〈0.01 or P〈0.05）.Conclusions The life quality of the early rectal intestinal stoma patients and their families are not optimistic , and the life quality of patients interacts with the life quality of their families.The life quality of the rectal intestinal stoma patients is actively improved by the medical personnel , and the medical personnel should care for the life quality of patients ＇ families.During the intervention the life quality of patients and their families should be taken as a whole , and the medical personnel should provide the families with necessary support and guidance . Key words: Rectal cancer; Intestinal stoma; Quality of life ; Family members