Introduction of Questionnaires for Quality of Life of Patients with Malignant Tumors of the Central Nervous System into Neurosurgical Practice in the Republic of Kazakhstan.

Serik Akshulakov,Nurzhan Ryskeldiyev,Zauresh Akhmetzhanova,Aidos Doskaliyev,Nurgul Aldiyarova,Talgat Kerimbayev,Kamila Gaitova,Raushan Auezova

doi:10.7314/apjcp.2016.17.2.873

Abstract

Studies of quality of life (QoL) of oncological patients is carried out using questionnaires approved in many international clinical studies. The European Organization for Research and Treatment of Cancer EORTC QLQ-C30 (Quality of Life Questionnary-Core 30) and its special brain cancer module EORTC QLQ-BN20 are widely used in the world neurooncologic practice. They are available in more than 80 official versions of 30 languages of the world. Previously we used the official versions in Russian, which often causes difficulty in understanding for native Kazakh language speakers, who comprise more than 60% of our respondents. This was the reason for creating a version of Kazakh language. Therefore, in 2014 for the first time the process of adaptation of questionnaires to the Kazakh language was initiated. The translation process of questionnaires to Kazakh language was held in accordance with the requirements of the European Organization for Research and Treatment of Cancer EORTC on QoL and consisted of the following stages: preparation - translation - pilot testing - approval. The official permission of authors and "Guideline on translation" was obtained which was developed by the working group of the EORTC on QoL. The pilot testing of EORTC QLQ-C30 and QLQ-BN20 questionnaires was conducted on the basis of the Department of Central Nervous System Pathology of the "National Centre for Neurosurgery" in patients with malignant tumors of the central nervous system. The official versions of the EORTC QLQ-C30 and QLQ-BN20 questionnaires in Kazakh language were introduced and adapted in practical neurosurgical operations in Kazakhstan. The approved versions of the questionnaires in Kazakh language are now available for mainstream use on the official website EORTC.com. The versions of these questionnaires can be used in domestic cohort studies and clinical practice in the Republic of Kazakhstan. The use of these tools for assessing QoL will help professionals in the planning of individual treatment strategies and selection of the necessary therapy.

Highlights

Introduction of Questionnaires for Quality ofLife of Patients with Malignant Tumors of the Central Nervous System into Neurosurgical Practice in the Republic of KazakhstanSerik Akshulakov1, Nurgul Aldiyarova1, Nurzhan Ryskeldiyev1, Zauresh Akhmetzhanova1,2*, Kamila Gaitova2, Raushan Auezova1, Aidos Doskaliyev1, Talgat Kerimbayev1 Abstract
The European Organization for Research and Treatment of Cancer EORTC QLQ-C30 (Quality of Life Questionnary-Core 30) and its special brain cancer module EORTC QLQ-BN20 are widely used in the world neurooncologic practice
We used the official versions in Russian, which often causes difficulty in understanding for native Kazakh language speakers, who comprise more than 60% of our respondents

Summary

Introduction

Introduction of Questionnaires for Quality ofLife of Patients with Malignant Tumors of the Central Nervous System into Neurosurgical Practice in the Republic of KazakhstanSerik Akshulakov1, Nurgul Aldiyarova1, Nurzhan Ryskeldiyev1, Zauresh Akhmetzhanova1,2*, Kamila Gaitova2, Raushan Auezova1, Aidos Doskaliyev1, Talgat Kerimbayev1 Abstract. Background: Studies of quality of life (QoL) of oncological patients is carried out using questionnaires approved in many international clinical studies. Materials and Methods: The translation process of questionnaires to Kazakh language was held in accordance with the requirements of the European Organization for Research and Treatment of Cancer EORTC on QoL and consisted of the following stages: preparation - translation - pilot testing - approval.

Results

Conclusion