Portuguese Version of the EORTC QLQ-OES18 and QLQ-OG25 for Health-Related Quality of Life Assessment.

Abstract

Health-related quality of life assessment is increasingly important as it can help both clinical research and care forpatients, particularly among oncological patients. Quality of Life Questionnaire - OES18 (esophageal module) and Quality of LifeQuestionnaire - OG25 (esophagogastric module) are the European Organization for Research and Treatment of Cancer modules forthe evaluation of quality of life in patients with esophageal and esophagogastric cancers, respectively. The aim of our study was totranslate, to culturally adapt and to perform a pilot testing to create the Portuguese version of both questionnaires. The European Organization for Research and Treatment of Cancer guidelines were followed for translation,cultural adaptation and pilot testing of Quality of Life Questionnaire - OES18 (esophageal module) and Quality of Life Questionnaire- OG25 (esophagogastric module). The Quality of Life Questionnaire - OG25 (esophagogastric module) went through a process offorward (English → Portuguese) and backward (Portuguese → English) translation, by independent native speaker translators. Afterreview, a preliminary version was created to be pilot tested among Portuguese patients. As a Brazilian version was already availablefor Quality of Life Questionnaire - OES18 (esophageal module), the questionnaire was simply culturally adapted and pilot tested. Bothcancer and non-cancer patients were included. Overall, 30 patients completed the Portuguese version of each questionnaire. Afterwards, a structured interview wasconducted to find and report any problematic items. Troublesome items and wording were changed according to the pilot testing results.The final versions were sent to the European Organisation for Research and Treatment of Cancer Quality of Life Group and approved. The Portuguese versions of the European Organization for Research and Treatment of Cancer Quality of LifeQuestionnaire - OES18 (esophageal module) and OG25 (esophagogastric module) questionnaires are useful, reliable and valid toolsfor measuring health-related quality of life in patients with esophageal and esophagogastric cancers, respectively. They can now beused in clinical setting and for scientific purposes.